In parenting, you have to sometimes teach your children that life can throw you a curve ball and you have no choice but to change your plans. Having been self employed for 13 years and spent half a semester pursuing a Bachelor of Science degree, I think it’s safe to say I know a thing or two about
the music industry life throwing you a curve ball.
This week we received yet another curve ball to my health status. Having been told that the liver was damaged completely, leaving us with a transplant as our only option, we finally spoke to the transplant surgeon in Toronto.
After speaking with him, it now sounds like a transplant is not the best option… or even, an option (by the sounds of it), as the tumour is too large to consider a transplant.
The good news is the doctor believes that the right third of my liver could be functioning enough that removing the left side (called a resection) that would include removing the tumour could be the best option. This was initially what I was hoping for all along, so it’s a bit of a shock to be told that resection was off the table and transplant was our only hope. Then to be told transplant is no longer an option and resection is our best hope. Confusing times. I know it’s easy to read that and find more hope in it, but to be honest we were so invested in a transplant that it was a lot to take in. However, resection has a few benefits.
First of all, the surgery would happen quicker, as in a transplant, they would need to see that the tumour isn’t so aggressive which is done by monitoring the tumour over a minimum 3 month period. It also means that we don’t have to wait for what I was told was the “maximum dose of chemo and radiation” before the surgery.
But resection is also not a given. We need to make sure the right side of the liver is functioning properly, and that the artery going into the right side of the liver is also working as it should – you know – to make sure that the small portion of liver remaining can actually keep me alive. I’m very much for that. So there’s a series of imaging tests coming up. Also, I have to get healthy enough to be able to have this surgery. This means putting on some weight. I have lost over 30 pounds in under two months, so need to get my appetite up.
So that’s our focus right now. We’re good with this news as long as there is still hope. And so, we are in good spirits… cautiously.